A clinical cancer registry is an important part of any tumor center. Here, cancer patients' medical data are collected and documented so they can be evaluated. This includes patients seeking a second opinion as well as those that are receiving treatment during an advanced stage of their illness. Specially trained documentalists and assistants enter the data into the cancer registry. The primary goal of this data collection is to support research projects and quality control in the treatment of cancer.
NCT Cancer Registry
Tasks and objectives
In addition, the medical cancer registry serves as the basis for reports for supporters and certifying bodies. Physicians and scientists at the NCT may either retrieve and analyze their data from the registry themselves, or the NCT cancer registry staff will provide data evaluations.
Keeping patient records accurate, current and complete presents a particular challenge. Many patients visit the NCT only for the duration of a specific treatment phase, e.g. for an operation or radio therapy, and subsequently continue their treatment with resident doctors or at facilities closer to their home.
In order for this information to be included, the NCT Cancer Registry will contact the treating physicians and ask for transfer of the respective information, relying on the cooperation of the individual physician. In return, it is possible to include external physicians in scientific projects and publications if they are interested. This process of data collection requires the patients’ written consent. Without the patient consent, the respective research will not be carried out.
Handbooks for general and organ-specific tumor documentation
In order to be able to compare and evaluate the data from the NCT cancer registry, they are encrypted according to national and international regulations. This set of rules has been compiled in handbooks. These give an insight into the way the data are stored. The handbooks are available for download below.
They contain recommendations for encryption, rules for documentation, tumor classifications for specific organs, anatomically confined organ areas and organ systems. Furthermore: code ICD-O-3 histology according to WHO classification, ICD-O-3-localization, ICD-10-diagnosis, regional lymph nodes, multiple tumors, tumor-specific staging, classification etc. Users are requested to adhere to the citation rules given in the handbooks.