PETUPAL: Preference-based decision aid to support participatory decisions about tumor-specific and palliative therapy in the last months of life
Decisions about the intensity of tumour-specific treatment for patients in the advanced stage of their disease are experienced as challenging by both the patient and the oncologist. Although the active involvement of patients in end-of-life treatment planning has been encouraged by cancer societies for more than a decade, translation into clinical practice remains a challenge. Oncologists often avoid talking about prognosis and forgoing tumor-specific therapies because they see this as one of the most difficult communication tasks. The development of decision aids is a strategy to facilitate patient participation and to support patients and their oncologist in making participatory decisions. By providing evidence-based information, they can help patients formulate their preferences and make decisions together with their family and doctor. Although decision-making aids have proven of value in other complex situations, they do not yet exist for the problem at hand.
The aim of this interdisciplinary joint project is to develop a decision-making aid that supports cancer patients in the advanced stages, their relatives and oncologists in deciding for or against tumor-specific treatment and the integration of palliative therapy in the last six months of life.
This project is funded by German Cancer Aid (DKH)
Term: 2019-2022
Oncology / Ethics | Health Economics | Ethics | Health Services Research | Palliative Medicine |
Heidelberg University Medical Faculty Heidelberg University Hospital National Center for Tumor Diseases | Bielefeld University Faculty of Health Sciences Health Economics and Health Management | Halle-Wittenberg University Institute for the History and Ethics of Medicine University Medicine | Heidelberg University Medical Faculty Heidelberg University Hospital | Jena University Jena University Hospital |
Prof. Dr. med. Dr. phil. Eva Winkler, Dr. rer. med. Katsiaryna Laryionava, Rebecca Boekels | Prof. Dr. Wolfgang Greiner | Prof. Dr. Jan Schildmann | Prof. Dr. Michel Wensing | PD Dr. Ulrich Wedding |