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At the NCT, patients and their families can help shape research projects from an early stage. A new initiative now allows individuals to register as research partners and actively contribute to the development of clinical trials.

This is not about participating in studies, but about collaborating on their planning. Participants provide feedback on study designs, share their experiences, and help formulate research questions in a way that is clear and patient-centered. No medical expertise is required; rather, the focus is on the perspective of patients, family members, and interested individuals.

This initiative is part of the NCT’s structured patient involvement program. The goal is to systematically integrate the perspectives of those affected into research—from the initial idea through to implementation. This allows clinical trials to be better aligned with the needs and real-life circumstances of the people they are intended for.

We are looking for people who would like to share their own experiences—regardless of whether they are currently ill or have been ill, are supporting a family member, or are already involved in a patient organization. You can register directly using a form. The information provided helps the team identify suitable projects and invite interested individuals to participate. Further information on patient involvement and

The registration form is available on the NCT website. Further information on patient involvement and the offerings of the Patient Expert Academy are also available there.

(Graphic: © Manuel Recker Graphic Recording)