Contact

 

Prof. Dr. med. Dr. phil. Eva Winkler

Please contact:
Dr. phil. Christoph Schickhardt
Phone: +49 6221 5636756

E-mail: eva.winkler@med.uni-heidelberg.de

 

 

DASYMED: Big Data in Systems Medicine

 

The interdisciplinary research network aims at analyzing the normative implications of systems medicine with regard to three key aspects. Core of the project are questions concerning possible new responsibilities of physicians and researchers. Regarding diagnosis and therapy, researchers become more important for analysis and interpretation of patient data. This raises questions about their responsibilities for patients and attending physicians. Furthermore, since approaches in systems medicine deal with huge amounts of patient-related data, questions about the value as well as need for protecting the patients’ privacy arise. The third key aspect deals with the consequences of systems medicine for the patients’ relatives with regard to the handling of genetic information. The project consists of a socio-empirical, an ethical and a legal subproject and works in close collaboration with a local, natural scientific panel of experts from genomic research and clinical practice.

Normative and Social Issues for Physicians, Patients and Society, Subprojects 1 and 2

University of Heidelberg
Medical Faculty and University Hospital Heidelberg
National Center for Tumor Diseases

Im Neuenheimer Feld 460
69120 Heidelberg

Head: PD Dr. med. Dr. phil. Eva Winkler
Phone: +49 6221 56-36049
FKZ: 01GP1404A
Funds: 635.969 EUR
Term: 01.08.2014 - 31.07.2017    

Wissenschaftlicher Gesamtkoordinator: Dr. phil. Christoph Schickhardt

The subprojects are located at the interface between genomic research and clinical practice as implemented through the collaboration of several central institutions of the Heidelberg University Hospital (e.g. the interdisciplinary tumor board “The individual patient”). Their first task is the empirical description of the current systems medicine practice in Heidelberg as well as the normatively relevant developments in systems medicine and the definition of key terms. This will be the basis for an analysis of normative implications of systems medicine as well as the development of possible solutions. The third task is to transfer the theoretical results into practice.

Staff

Dipl.-Soz. Sandra Fernau
Phone: +49 6221 5635022
sandra.fernau@med.uni-heidelberg.de

 
 


Legal Analysis of the Impacts of Systems Medicine, Subproject 3

Head: Prof. Dr. Jochen Taupitz»
Phone: +49 621 1811328
FKZ: 01GP1404B
Term: 01.08.2014 - 31.07.2017





 

The legal subproject consists of two parts, namely “Big Data and Privacy” and “Translational Responsibility”. With regard to “Big Data and Privacy”, a key task of the legal entities is to specify the scope of application of the regulations that apply to research as well as clinical practice, especially concerning genetic data. On the one hand, the potential of systems medicine must be acknowledged in an appropriate manner. On the other hand, the undermining of fundamental rights of the person – which is conceivable in the context of the collection of large amounts of data – must be avoided. This, in turn, will be the basis for “Translational Responsibility”, which analyses legal aspects concerning responsibilities and liability in systems medicine. This is necessary because as a result of huge databases in systems medicine, many non-medical persons are involved and computer programs are of major importance.

Staff

Henrike Fleischer   
Phone: +49 621 181-1984  
henrike.fleischer@imgb.de


 
 
 

Practical Achievements

  • Ausführliche Darstellung einer Empfehlung für ein mehrstufiges Verfahren zum Umgang mit Anfragen von Patienten und Probanden bezüglich einer Herausgabe ihrer genetischen Rohdaten: Download als PDF-Datei (202 KB)»

  • DASYMED-Workshop „Verantwortung und Privatsphäre in der Systemmedizin“ am NCT Heidelberg, 22./23.4.2016.